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Useful resources

For links to charities and support groups for particular conditions click here.

 

Review of Palliative Care for Children and Young Adults in the Thames Valley 2011

Helen & Douglas House has commissioned and authored a collaborative review of palliative care need and provision in the region for patients up to the age of 40 years.
The findings of the review are presented as a consultative report, with provisional recommendations at national, regional and organisational levels. The report can be read and downloaded here. 

 

An executive summary can be downloaded here.


We will be pleased to continue the dialogue about age-appropriate palliative care, and to learn how you have used the findings from the review. Please contact David Savage dsavage@helenanddouglas.org.uk 

 

You can also download the following clinical toolkits, produced by Helen & Douglas House:

 

Palliative Care Toolkit

 

Supervision Toolkit

 

General hospice information

 

Together for Short Lives (previously ACT & Children's Hospices UK)

We are the UK voice for children and young people who are not expected to live to reach adulthood and their families. We are here to ensure that these families have best quality care and support wherever they live and for as long as they need it. www.togetherforshortlives.org.uk

 

Hospice Information
"Hospice Information is a joint venture between St. Christopher's Hospice and Help the Hospices (now Hospice UK). It brings together the experience and established reputation for high quality of the Hospice Information Service at St. Christopher's and the national remit and innovative information developments of Help the Hospices (now Hospice UK). Together, we want to provide a world-class information service for health professionals and members of the public, on UK and international hospice and palliative care." http://www.hospiceinformation.info

Hospice UK
Hospice UK is the national charity for the hospice movement, founded in 1984 by Anne, Duchess of Norfolk.

Lifelites
This web-based resource provides information on the lifelites project, which aims to improve the quality of life for children with life-limiting illnesses, through the use of information technology. http://www.lifelites.org/

 

SpecialEffect

SpecialEffect is a charity dedicated to helping all young people with disabilities enjoy computer games. http://www.specialeffect.org.uk/

 

Other Children's Hospices:


Acorns
West Midlands http://www.acorns.org.uk

Bluebell Wood Children's Hospice
Doncaster http://www.bluebellwood.org

Butterwick
Stockton-on-Tees http://www.butterwick.org.uk

Children's Hospice Association Scotland
Rachel House, Kinross Robin House, Balloch http://www.chas.org.uk

Chestnut Tree House
Worthing, Sussex http://www.chestnut-tree-house.org.uk 
 

Children's Hospice South West
South West England http://www.chsw.org.uk

Claire House
Merseyside http://www.claire-house.org.uk

Rainbow Trust Children's Charity
Rainbow House in Surrey and Rainbow Fernstone in Northumberland. http://www.rainbowtrust.org.uk 
 

Rainbows
Loughborough http://www.rainbows.co.uk

Demelza House
South East England http://www.demelza.org.uk

Derian House
Preston, Lancashire http://www.derianhouse.co.uk

East Anglia's Children's Hospices
Quidenham (Norfolk), Milton (Cambs) and Ipswich (Suffolk) http://www.each.org.uk

Eden Valley Children's Hospice
Carlisle http://www.evhospice.org.uk

Ellenor Foundation
Kent http://www.ellenorfoundation.org


Francis House
Manchester http://www.francishouse.org.uk 
 

Haven House Foundation
Woodford Green, Essex http://www.havenhouse.org.uk

Hope House Children's Hospices
Hope House in Oswestry and Ty Gobaith in Conwy. http://www.hopehouse.org.uk

Iain Rennie Grove House Hospice Care
Hertfordshire http://www.irhh.org

Julia's House
Dorset http://www.julias-house.org

Keech Cottage
Luton http://www.pasque.org

Little Haven
South End, Essex http://www.seech.org.uk 
 

Martin House
Wetherby, Leeds http://www.martinhouse.org.uk

Naomi House
Nr Winchester, Hampshire http://www.naomihouse.org.uk

Noah's Ark
North London http://www.noahsarkhospice.org.uk

Northern Ireland Children's Hospice
Horizon House is in Newtownabbey. http://www.nihospicecare.com


St Andrew's Children's Hospice Unit
Lincolnshire, Hull and East Riding http://www.standrewshospice.com

St Oswalds
Newcastle  http://www.stoswaldsuk.org/ 


The Donna Louise Trust
Staffordshire and South Cheshire http://www.donnalouisetrust.org 
 

Shooting Star Chase
Guildford and Hampton, Middlesex http://www.shootingstar.org.uk 
 

Ty Hafan
Cardiff http://www.tyhafan.org

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